End of life best practice, training and resources
Best practice
Information on what others are doing to deliver the best care possible.
| Organisation | Description | Website/Document |
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Notts Task and Finish Group |
This protocol was developed by a task and finish group involving GPs, NEMS, Public Health, Cooperative Funerals, EMAS, Nottinghamshire Police and led by the Coroner’s office. |
Guidance for death in the community in Nottinghamshire [Word] |
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Sherwood Hospital Hospitals NHS Trust |
Carolyn Bennett, Macmillan Lead Nurse for End of Life & Cancer SFHFT has developed a leaflet that can be given to patients, family members or friends to prepare them for the last days of someone's life. |
Leaflet explaining what happens in the last days of life [Word] |
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Nottinghamshire County Council |
Support available to people nearing the end of their life, as well as their families, friends and carers. |
http://www.nottinghamshire.gov.uk/care/health-and-wellbeing/end-of-life-care |
Resources
Useful organisations and information for everyone involved in end of life care.
| Organisation/initiative | Description | Website/Document |
|---|---|---|
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ResPECT |
Learning resources and webinar training. |
https://teamnet.clarity.co.uk/Topics/Public/66eecb60-0c32-4c6e-bf07-aaeb0073dc44P (log-in may be required) |
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American Childhood Cancer Organization |
The American Childhood Cancer Organization® is the largest publisher and distributor of free childhood cancer books in the US.Our books and materials are targeted at parents, young patients, siblings, educators, and caregivers. We work constantly to develop new tools and resources for the population we serve. |
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Compassionate Communities |
A compassionate community gives ordinary people the skills to be able to address issues raised by end of life and other losses, and to be a helpful, empathic ear. |
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Conversations for Life |
Useful website for end of life communication tools. |
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County Health Partnerships |
End of life care training for health and social care staff. |
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CRUSE |
CRUSE is a leading national charity for bereaved people in England, Wales and Scotland. |
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Department of Health |
View the latest report into end of life care following the LCP review. |
One Chance to Get it Right - One Year On Report [PDF]. |
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Dying Matters |
Dying Matters is a broad based and inclusive national coalition of 30,000 members, which aims to change public knowledge, attitudes and behaviours towards dying, death and bereavement. The website is aimed at staff, proffessionals and members of the public. The Find me help website is useful for people looking for or working in end of life care. |
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East Midlands Ambulance Service |
East Midlands Ambulance Service NHS Trust (EMAS) provides emergency 999, urgent care and patient transport services for the East Midlands. They have a local Time to Talk leaflet and a useful guide to decisions about cardiopulmonary resuscitation (CPR). |
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East Midlands Ambulance Service |
End of Life Care guidance and documents for EMAS staff. Also useful for social care providers. |
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End of life care for all |
End of life care for all have developed an e-learning package to help train and educate health and social care staff delivering end of life care. |
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End-of-life care resources |
NHS Employers has developed a range of information and tools to train staff in end of life care. The resources include: an overview of end-of-life care including where the strategy has come from and what work has been done nationally; benefits of investing in training including how it can build a skilled workforce for the future; case studies from NHS organisations; a list of e-learning resources and training programmes; and tools to implement an end-of-life care strategy in organisations. |
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Gold Standards Framework |
The national GSF Centre for End of Life care are committed to improving the quality of care for all people in any setting as they near the end of their life. Their website is full of tools of best practice that are adaptable to any care setting. |
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Guidance from the Resuscitation Council (UK), British Cardiovascular Society and National Council for |
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Cardiovascular Implanted Electronic Devices in EOLC Guidance [PDF]. |
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Help the Hospices |
This is the UK charity for hospice care. It has information and support for anyone interested in hospice care. |
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Hospice Care UK |
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Guidance for staff responsible for care after death [PDF] |
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Huntington's Disease Association |
The Huntington's Disease Association is a UK registered charity which supports people affected by HD. They also provide information and advice to families, friends and healthcare professionals who support Huntington’s disease families. |
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Kings Mill Hospital |
Advance care plan developed by Carolyn Bennett, Macmillan Lead Nurse for End of Life & Cancer SFHFT at Kings Mills Hospital. |
Advance care plan [Word] |
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Macmillan Trust |
Macmillan Cancer Support improves the lives of people affected by cancer. |
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Marie Curie |
Marie Curie nurses provide care to terminally ill patients in their own homes or in our hospices, while offering support to their families. |
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National Council for Palliative Care |
National Council for Palliative Care is the umbrella charity for all those involved in palliative, end of life and hospice care. |
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Natural Death Centre |
The Natural Death Centre is a social entrepreneurial, educational charity that gives advice on all aspects of dying, bereavement and consumer rights in this area. |
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Nottinghamshire County Council |
Civil Funerals and the Tell Us Once scheme. |
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Nottinghamshire Healthcare NHS |
Nottinghamshire Healthcare is positive about providing integrated healthcare services, including mental health, learning disability and physical health services. |
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Paliamentary and Health Service Ombudsman |
Investigations by the Parlamentary and Health Service Ombudsman into complaints about end of life care. |
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Pathways Carer Support Service |
If you care for someone who is in the last year or years of their life you may need someone to listen to your concerns, may need help with practical things or just time for yourself. Pathways have experienced staff to provide these services to you. |
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Route to success - improving end of life care in care homes |
The following publications has been revised in light of recent changes and the introduction and implementation of Priorities for Care and they are now available for download. |
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SCILS online learning resource |
'Caring for a Dying Person' |
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Skills for Care |
Skills for Care have developed a knowledge set specifically for end of life care. |
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Skills for Care and Skills for Health |
These organisations have worked in partnership with the National End of Life Care Programme, the Department of Health to develop Common Core Principles and Competences for End of Life Care. |
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Soul Midwives |
Soul Midwives are non medical holistic companions who guide and support the dying in order to facilitate a gentle and tranquil death. |
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St Christopher's |
St Christopher's have produced a booklet and CD 'End of life care competences' which is aimed at nurses and care staff working in the community, care homes and hospitals. |
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Winston's Wish |
Winston's Wish is a childhood bereavement charity and the largest provider of services to bereaved children, young people and their families in the UK. |
